Cardio Appointment

Our cardiologist appointment on Wednesday went pretty well. Caden had an echo cardiogram on his heart to check out how everything is looking. I really love his cardiologist, but I think that these doctors from CHOC are very busy and sometimes forget the "ins and outs" of each patient. During Caden's echo the Dr. said he was going to see if his PDA was closing up. I was a little confused because I could clearly recall that we closed that annoying hole in his heart during a surgery at the hospital. I asked,"wasn't that repaired already?" And the doctor looked a little embarrassed and said,"Oh, yeah. That's right. That was repaired." Hmmmm? Well, good thing he doesn't have anything else serious going on with his heart. He does have a little hole called and ASD that looks like it is closing on it's own, and a thickened muscle in his heart, but the Dr. felt that those were not going to be a problem down the road. Caden was cleared for his lip repair surgery from a cardiology standpoint and that was great to hear.

Caden had feeding therapy, too, this week. His Tuesday appointment went like this: Load up the car with all of his crazy equipment-go a little mad trying to find parking-load him and crazy equipment into his stroller-practically run to get to his appointment on time- get into the therapy room and take him out of the stroller-attach electro-nodes on his neck- Caden screams bloody murder for a half an hour- load him back up and drive home in a sweat. I am sure these therapy sessions will pay off, but I think it will take awhile to get some things accomplished. They turned on the electro-nodes for about 5 minutes and then the therapist watched me try to calm my insanely upset baby for the remainder of the appointment that we ended early. I think he may have a little post traumatic stress from being in the hospital. I truly don't blame the guy, but I hope he can calm down in the near future so we can progress with his therapy. Thank goodness my mom came along or I may have been hospitalized for an emotional breakdown.

We are a little nervous for Caden right now because he seems to have come down with a little cold. The girls have had the sniffles lately and I think he unfortunately caught their bug. We are praying that he doesn't get any worse. It is scary because he already coughs so much on the mucus he has trouble swallowing, so it is ten times worse adding a cold to the situation. He was also supposed to have a small surgery on Monday to replace his original g-tube with a new type of tube, but we will probably have to delay this.

I did get a nice reprieve today. My mom and in-laws took turns taking care of Caden while I got to watch Natalie in two traveling All Stars soccer games in Laguna Niguel. It was great to get to enjoy watching her play and spend some time with the little girls. I posted a few pictures from the games. I am sad to see the soccer season end now because it was a nice escape to watch her play.

Heading into another crazy week, but thankful for our life starting to fall into a new pattern of "normal".

Mary

By the way, some people have mentioned that they are having trouble posting a comment, so I changed the comments settings. All you have to do is write your comment and then choose the "anonymous" label under the "comment as" category. Just make sure to include your name in your comment. Thanks! I love hearing from you guys:)